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NEWS ARCHIVE

Emory Clinic New Location

December 15, 2017

Please note: as of 12/2017, the Emory Clinic Department of Human Genetics has moved to a new location:

1365 Clifton Road, Building B, Suite 2200

Atlanta, GA 30322

Appointment Scheduling:  (404) 778-8570.

Also please also note the new updated Emory (read more)

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Uncategorized

Emory Filter Paper Submission Policy

December 15, 2017

The filter paper submission prevents an interruption in metabolic medication and/or metabolic formula  prescriptions for you or your child.

Filter paper results help the Clinic to provide you with good clinical care.  Please contact the Department of Human Genetics if … (read more)

EVENTS ARCHIVE

2017 Georgia PKU Connect Holiday Party

November 1, 2017

Mark your calendar NOW for the upcoming Georgia PKU Holiday Party!

12/3/2017 1:00PM-4:00PM

Decatur Recreation Center 231 Sycamore Street Decatur, GA 30030

We will have a holiday lunch buffet for all. Please bring your favorite low protein side dish and … (read more)

EVENTS ARCHIVE

BioMarin Event: Empowering vs Enabling

October 13, 2017

Coming up next Saturday, October 21st, BioMarin is sponsoring a workshop for parents who want to learn how to better handle parenting kids with complicated diets/treatments like PKU. This event, being held at the Georgia Aquarium, includes a Low-Phe meal … (read more)

Uncategorized

2017 SFK Personal Page Suggestions

October 2, 2017

If you are riding with us in this year’s Spin For Kids fundraiser, you will want to set up a “Personal Page” to direct your friends and family to for donations. When you register to ride, you will be given … (read more)

EVENTS ARCHIVE

2017 Spin for Kids

September 18, 2017

Recently, from August 25-27th, many of us had the opportunity to participate in the 2017 Camp Connect at Camp Twin Lakes in Winder Georgia where we experienced a great weekend of fun, great food, valuable information and the opportunity to … (read more)

EVENTS ARCHIVE

Come Cook With Us

August 23, 2017

Do you live near Macon, GA? If so, mark your calendars for Sept 24. BioMarin is hosting a hands-on PKU cooking class featuring a professional chef, plus information about PKU, Phe levels and the brain.

Click here for more information(read more)

General Archive

Making It Better Survey

August 7, 2017

If you live in Georgia, and you or someone you know has an inherited metabolic condition (e.g. PKU, VLCAD, MSUD, etc.), we need your feedback.

We mentioned recently that you would be receiving information on a survey being conducted by … (read more)

Expired Feature

Important Survey Coming Soon

July 26, 2017
If you, or someone you know has an inherited metabolic condition (e.g. PKU, VLCAD, MSUD, etc.), we need your feedback. Very soon you will be receiving information on a survey being conducted by Georgia PKU Connect*. The purpose of this… (read more)
ADVOCACY

National School Lunch Program – It’s Your Right!

July 24, 2017

Did you know that PKU children are entitled to assistance under the National School Lunch program? It’s true. If your child attends a school that receives funding under the National School Lunch program, the school is required to make accommodations … (read more)

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