2018 - Georgia PKU Connect

Cinnamon Buns

November 22, 2018

CINNAMON BUNS OR CINNAMON SWIRL BREAD Ingredients: Water, warm 1 cup (225 ml) + ¼ cup Brown sugar +honey 1 Tbsp +1 Tbsp Molasses (optional, improves color) ¼ tsp Active dry yeast 1 package (1 ½ tsp or 7… (read more)

Thanksgiving is coming…

November 13, 2018

Try this low protein Corn Bread recipe in our new Recipes section.

… (read more)

Cornbread

November 12, 2018

VERSA MIX CORN MUFFINS/BREAD TC- Versa Mix 1 ¼ cup (140 gm) sifted Corn meal 1 Tbs (8 g) Brown Sugar 2 Tbs (30 g) Butter (melted) 2 Tbs Vegetable oil 1 Tbs Cream-Style Corn ¼ Cup (40 gm) Water… (read more)

EVENTS ARCHIVE

Webinar: Understanding Insurance Coverage for Access to Medical Foods/Formula

November 9, 2018

When: Thursday, November 15th Time: 7:30PM-8:30PM EST Where: Online – Webinar

You Must RSVP to Participate

Details are Here

… (read more)

2018 Holiday Party

October 27, 2018

Join Us for Some Holiday Fun: Enjoy Park Amenities! Low Protein Lunch Provided! Fabulous Door Prizes! Here are the details:

When: Sunday, December 2, 2018 Where: Sweetwater Park: https://gastateparks.org/sweetwatercreek What: Lunch Served in the Event Room from 12:00-2:00 pm EST, … (read more)

2018 Spin For Kids

September 5, 2018

Do you like to ride? Or do you just like hanging out with and supporting your PKU friends? Either way, plan on participating in Spin for Kids this year!

Recently, from August 17th-19th, many of us had the opportunity … (read more)

2018 SFK Personal Page Suggestions

September 4, 2018

If you are riding with us in this year’s Spin For Kids fundraiser, you will want to set up a “Personal Page” to direct your friends and family to for donations. When you register to ride, you will be given … (read more)

ADVOCACY

SERN Introduces Emergency Toolkit

July 17, 2018

Have you ever been traveling or faced with an emergency situation where you realized you weren’t fully prepared? We’ve all heard that we should be prepared for emergencies but for those with rare genetic disorders, there are some special considerations … (read more)

ADVOCACY NEWS

Medical Foods Coverage Update

July 12, 2018

A little more than a year ago, the Medical Nutrition Equity Act (MNEA) was introduced in Congress… Exactly what is MNEA? MNEA would ensure that public and private insurance covers medically necessary foods – medical formulas and low protein… (read more)

Year: 2018