We are dedicated to Georgia's Phenylketonuria (PKU) community.
Our mission is to connect PKU families and individuals with the support
and resources they need to manage PKU and live healthy, productive lives.
Georgia PKU Connect is excited to announce that the 6th Camp Connect for children with PKU and their families will take place on the weekend of August 25th thru August 27th in Winder, Georgia. Thanks to our partnership with Camp Twin Lakes and our generous sponsors, we are able to keep the camp cost down. More details will be sent in regards to camp updates, packing list and directions via email once we receive registration ... (read more)
If you, or someone you know has an inherited metabolic condition (e.g. PKU, VLCAD, MSUD, etc.), we need your feedback. Very soon you will be receiving information on a survey being conducted by Georgia PKU Connect*. The purpose of this survey is to gain a better understanding of the challenges faced by individuals with metabolic conditions in accessing resources needed for the optimal management and treatment of the disorder. Our intent is to examine many major aspects of disorder management including medical care, lab visits, ... (read more)