We are dedicated to Georgia's Phenylketonuria (PKU) community.
Our mission is to connect PKU families and individuals with the support
and resources they need to manage PKU and live healthy, productive lives.
A little more than a year ago, the Medical Nutrition Equity Act (MNEA) was introduced in Congress… Exactly what is MNEA? MNEA would ensure that public and private insurance covers medically necessary foods – medical formulas and low protein modified foods – required by children and adults with PKU and other inborn errors of metabolism. It would end the inconsistent or outright denial of insurance coverage for these essential products and greatly reduce the financial burden of managing PKU and other diseases. Since the bill ... (read more)
Cambrooke Therapeutics, makers of Glytactin with GMP formulas, and Georgia PKU Connect invite you to a Low Protein Food Tailgate and Atlanta Silverbacks F.C. Soccer Match.
Up to 4 FREE match tickets and one car pass per family (provided by Cambrooke Therapeutics). PLUS other surprises! Match tickets will be picked up at the Tailgate. Car pass will be sent via email prior to the event. Date Saturday, May 6, 2017 Time Tailgate starts at 2:30pm; Soccer Match starts at 5pm Location Atlanta Silverbacks Park 3200 Atlanta Silverbacks Way Atlanta, GA 30340 (For tailgate: just look for the Brown/Tan Class A “RV” in parking lot) Respond By April 22 to: Adele, GA PKU Connect, (PKUevents@gmail.com) For Info Call Dan, Cambrooke, at 630 660 4930
Join us for the launch of the MNT4P Program and find out how we can serve your family. Where: Emory Conference Center Hotel Atlanta, Georgia When: Saturday, May 20th, 2017 11:00am – 2:00pm RSVP: Mary Lauren Salvatore, Project Manager (404) 778-8527 or firstname.lastname@example.org by May 10th Light snacks will be served. We will have a babysitter available on-site if you will need to bring your children. Please indicate this when you RSVP.
(Blue square indicates upcoming event. Click on day for info.)