We are dedicated to Georgia's Phenylketonuria (PKU) community.
Our mission is to connect PKU families and individuals with the support
and resources they need to manage PKU and live healthy, productive lives.
The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Under the leadership of the National Organization for Rare Disorders (NORD), the newly formed Patients & Providers for Medical Nutrition Equity coalition held its first meeting in November 2017. Since that time, the coalition has been busy developing info sheets for all digestive and inherited metabolic disorders covered by the bill, identifying cost documentation ... (read more)
In recognition of National Nutrition Month, Georgia PKU Connect is launching a new section to its website: “Diet Info”. Starting this month, in this section we will begin to post nutrition information, recipe ideas, diet tips and other information. Check it out now and be sure to check back regularly for new information.
3200 Atlanta Silverbacks Way, Atlanta, GA 30340, USA
Cambrooke Therapeutics, makers of Glytactin with GMP formulas, and Georgia PKU Connect invite you to a Low Protein Food Tailgate and Atlanta Silverbacks F.C. Soccer Match.
Up to 4 FREE match tickets and one car pass per family (provided by Cambrooke Therapeutics). PLUS other surprises! Match tickets will be picked up at the Tailgate. Car pass will be sent via email prior to the event. Date Saturday, May 6, 2017 Time Tailgate starts at 2:30pm; Soccer Match starts at 5pm Location Atlanta Silverbacks Park 3200 Atlanta Silverbacks Way Atlanta, GA 30340 (For tailgate: just look for the Brown/Tan Class A “RV” in parking lot) Respond By April 22 to: Adele, GA PKU Connect, (PKUevents@gmail.com) For Info Call Dan, Cambrooke, at 630 660 4930
Join us for the launch of the MNT4P Program and find out how we can serve your family. Where: Emory Conference Center Hotel Atlanta, Georgia When: Saturday, May 20th, 2017 11:00am – 2:00pm RSVP: Mary Lauren Salvatore, Project Manager (404) 778-8527 or firstname.lastname@example.org by May 10th Light snacks will be served. We will have a babysitter available on-site if you will need to bring your children. Please indicate this when you RSVP.
(Blue square indicates upcoming event. Click on day for info.)