We are dedicated to Georgia's Phenylketonuria (PKU) community.
Our mission is to connect PKU families and individuals with the support
and resources they need to manage PKU and live healthy, productive lives.
Coming up next Saturday, October 21st, BioMarin is sponsoring a workshop for parents who want to learn how to better handle parenting kids with complicated diets/treatments like PKU. This event, being held at the Georgia Aquarium, includes a Low-Phe meal and promises to be a fun and informative time. For more information, click here.
Recently, from August 25-27th, many of us had the opportunity to participate in the 2017 Camp Connect at Camp Twin Lakes in Winder Georgia where we experienced a great weekend of fun, great food, valuable information and the opportunity to meet with other PKU families. This camp is affordable for many of our PKU families because of our relationship with Camp Twin Lakes. The Camp Twin Lakes “Spin for Kids” fundraising bike ride is our opportunity to help raise money that helps provide life-changing camp ... (read more)
Cambrooke Therapeutics, makers of Glytactin with GMP formulas, and Georgia PKU Connect invite you to a Low Protein Food Tailgate and Atlanta Silverbacks F.C. Soccer Match.
Up to 4 FREE match tickets and one car pass per family (provided by Cambrooke Therapeutics). PLUS other surprises! Match tickets will be picked up at the Tailgate. Car pass will be sent via email prior to the event. Date Saturday, May 6, 2017 Time Tailgate starts at 2:30pm; Soccer Match starts at 5pm Location Atlanta Silverbacks Park 3200 Atlanta Silverbacks Way Atlanta, GA 30340 (For tailgate: just look for the Brown/Tan Class A “RV” in parking lot) Respond By April 22 to: Adele, GA PKU Connect, (PKUevents@gmail.com) For Info Call Dan, Cambrooke, at 630 660 4930
Join us for the launch of the MNT4P Program and find out how we can serve your family. Where: Emory Conference Center Hotel Atlanta, Georgia When: Saturday, May 20th, 2017 11:00am – 2:00pm RSVP: Mary Lauren Salvatore, Project Manager (404) 778-8527 or firstname.lastname@example.org by May 10th Light snacks will be served. We will have a babysitter available on-site if you will need to bring your children. Please indicate this when you RSVP.
(Blue square indicates upcoming event. Click on day for info.)