Welcome to Georgia PKU Connect, Inc.

We are dedicated to Georgia's Phenylketonuria (PKU) community. Our mission is to connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives.

  • If you, or someone you know has an inherited metabolic condition (e.g. PKU, VLCAD, MSUD, etc.), we need your feedback. We mentioned recently that you would be receiving information on a survey being conducted by Georgia PKU Connect*. The survey is now available. The purpose of this survey is to gain a better understanding of the challenges faced by individuals with metabolic conditions in accessing resources needed for the optimal management and treatment of the ... (read more)
  • 2017 Camp Connect

    June 20, 2017
    Georgia PKU Connect is excited to announce that the 6th Camp Connect for children with PKU and their families will take place on the weekend of August 25th thru August 27th in Winder, Georgia. Thanks to our partnership with Camp Twin Lakes and our generous sponsors, we are able to keep the camp cost down. More details will be sent in regards to camp updates, packing list and directions via email once we receive registration materials and fees. Thank you, Adele Hunt Camp Director for Camp ... (read more)

QUICK INFO:

EVENT CALENDAR:

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  • Cambrooke Therapeutics and Georgia PKU Connect Tailgate and Soccer Match

    2:30 PM-8:00 PM
    05/06/2017

    3200 Atlanta Silverbacks Way, Atlanta, GA 30340, USA

    3200 Atlanta Silverbacks Way, Atlanta, GA 30340, USA

    You’re invited!

    Cambrooke Therapeutics, makers of Glytactin with GMP formulas, and Georgia PKU Connect
    invite you to a Low Protein Food Tailgate and Atlanta Silverbacks F.C. Soccer Match.

    Up to 4 FREE match tickets and one car pass per family (provided by Cambrooke Therapeutics). PLUS other surprises!
    Match tickets will be picked up at the Tailgate. Car pass will be sent via email prior to the event.
    Date Saturday, May 6, 2017
    Time Tailgate starts at 2:30pm; Soccer Match starts at 5pm
    Location Atlanta Silverbacks Park
    3200 Atlanta Silverbacks Way Atlanta, GA 30340
    (For tailgate: just look for the Brown/Tan Class A “RV” in parking lot)
    Respond By April 22 to: Adele, GA PKU Connect, (PKUevents@gmail.com)
    For Info Call Dan, Cambrooke, at 630 660 4930

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  • MNT4P Launch Event

    11:00 AM-2:00 PM
    05/20/2017
    1615 Clifton Rd, Atlanta, GA 30329, USA

    1615 Clifton Rd, Atlanta, GA 30329, USA

    Join us for the launch of the MNT4P Program and find out how we can serve your family.
    Where: Emory Conference Center Hotel
    Atlanta, Georgia
    When:  Saturday, May 20th, 2017
    11:00am – 2:00pm
    RSVP: Mary Lauren Salvatore, Project Manager
    (404) 778-8527 or mlsalva@emory.edu by May 10th
    Light snacks will be served.
    We will have a babysitter available on-site if you will need to bring your children. Please indicate this when you RSVP.

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(Blue square indicates upcoming event. Click on day for info.)