We are dedicated to Georgia's Phenylketonuria (PKU) community.
Our mission is to connect PKU families and individuals with the support
and resources they need to manage PKU and live healthy, productive lives.
A little more than a year ago, the Medical Nutrition Equity Act (MNEA) was introduced in Congress… Exactly what is MNEA? MNEA would ensure that public and private insurance covers medically necessary foods – medical formulas and low protein modified foods – required by children and adults with PKU and other inborn errors of metabolism. It would end the inconsistent or outright denial of insurance coverage for these essential products and greatly reduce the financial burden of managing PKU and other diseases. Since the bill ... (read more)