We are dedicated to Georgia's Phenylketonuria (PKU) community.
Our mission is to connect PKU families and individuals with the support
and resources they need to manage PKU and live healthy, productive lives.
The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Under the leadership of the National Organization for Rare Disorders (NORD), the newly formed Patients & Providers for Medical Nutrition Equity coalition held its first meeting in November 2017. Since that time, the coalition has been busy developing info sheets for all digestive and inherited metabolic disorders covered by the bill, identifying cost documentation ... (read more)
In recognition of National Nutrition Month, Georgia PKU Connect is launching a new section to its website: “Diet Info”. Starting this month, in this section we will begin to post nutrition information, recipe ideas, diet tips and other information. Check it out now and be sure to check back regularly for new information.
