ADVOCACY

Medical Foods Coverage Update

July 12, 2018
A little more than a year ago, the Medical Nutrition Equity Act (MNEA) was introduced in Congress… Exactly what is MNEA? MNEA would ensure that public and private insurance covers medically necessary foods – medical formulas and low protein modified… (read more)
ADVOCACY

New Medical Nutrition Equity Act Coalition

March 6, 2018

The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Under the leadership of the National Organization for Rare Disorders (NORD), the newly formed Patients & Providers for Medical … (read more)

ADVOCACY

National School Lunch Program – It’s Your Right!

July 24, 2017

Did you know that PKU children are entitled to assistance under the National School Lunch program? It’s true. If your child attends a school that receives funding under the National School Lunch program, the school is required to make accommodations … (read more)