EVENTS ARCHIVE

BioMarin Event: Empowering vs Enabling

October 13, 2017

Coming up next Saturday, October 21st, BioMarin is sponsoring a workshop for parents who want to learn how to better handle parenting kids with complicated diets/treatments like PKU. This event, being held at the Georgia Aquarium, includes a Low-Phe meal … (read more)

EVENTS ARCHIVE

2017 Spin for Kids

September 18, 2017

Recently, from August 25-27th, many of us had the opportunity to participate in the 2017 Camp Connect at Camp Twin Lakes in Winder Georgia where we experienced a great weekend of fun, great food, valuable information and the opportunity to … (read more)

EVENTS ARCHIVE

Come Cook With Us

August 23, 2017

Do you live near Macon, GA? If so, mark your calendars for Sept 24. BioMarin is hosting a hands-on PKU cooking class featuring a professional chef, plus information about PKU, Phe levels and the brain.

Click here for more information(read more)

EVENTS ARCHIVE

2017 Camp Connect

June 20, 2017

Georgia PKU Connect is excited to announce that the 6th Camp Connect for children with PKU and their families will take place on the weekend of August 25th thru August 27th in Winder, Georgia.

Thanks to our partnership with Camp … (read more)

EVENTS ARCHIVE

Medical Foods Assistance Program Launch Event

April 18, 2017

Need help paying for medical foods? Now there’s help, through the brand-new Medical Nutrition Therapy for Prevention program. To find out about this great new program, plan on attending a special launch event on May 20th sponsored by the Georgia … (read more)

EVENTS ARCHIVE

Camp Connect 2016

December 2, 2016

The weekend of August 26-28, we hosted our annual PKU Family Camp at the amazing Camp Twin Lakes in Winder, Georgia. We were thrilled to welcome 110 PKU Community members from GA, FL, AL, NC, NY, and even Canada!

 … (read more)

EVENTS ARCHIVE

2016 Spin for Kids

December 2, 2016
Camp Connect and Camp Twin Lakes Fundraiser

Georgia PKU Connect’s fundraising team, the Camp Connect Cranks participated in CTL’s annual bike ride event, Spin for Kids on October 16th. So far, our PKU Team has raised $5,350 to help fund … (read more)

EVENTS ARCHIVE

GEORGIA PKU CONNECT HOLIDAY PARTY

November 21, 2016

Join us for low-protein potluck & recipe swap, holiday crafts, games, $5 gift exchange, music, and ugly holiday sweater contest!!!!

Georgia PKU Connect’s end of year board of directors meeting will be held directly after the event and members are … (read more)