Feature 2

Medical Foods Assistance Program Launch Event

April 18, 2017

Need help paying for medical foods? Now there’s help, through the brand-new Medical Nutrition Therapy for Prevention program. To find out about this great new program, plan on attending a special launch event on May 20th sponsored by the Georgia … (read more)

NEWS AND EVENTS

Medical Nutrition Therapy For Prevention Program (MNT4P)

April 3, 2017
Are you having difficulty paying for PKU medical foods (formula and low protein foods)? As we all know, without insurance coverage, the formulas and special low protein foods for PKU can become a very significant financial burden for PKU families,… (read more)
NEWS AND EVENTS

Camp Connect 2017

February 15, 2017

Every year Camp Connect partners with Camp Twin Lakes to provide a PKU program for over 100 of our campers.

This past year, the weekend of August 26-28, we were thrilled to welcome 110 PKU Community members from GA, FL, … (read more)

NEWS AND EVENTS

Press Release from NORD on “Rare Disease Day”

February 14, 2017
Georgia Advocates Hold Important Advocacy Event for Rare Disease Day®

Atlanta, GA February 17,  2017—Join rare disease patients, caregivers and other health care advocates looking to make a difference in Georgia on February 17th as part of Rare Disease Day® … (read more)

Feature 2

BIG CHANGES FOR EMORY CLINIC AND LAB

February 13, 2017

For several months, we have been reporting that the Emory Genetics Lab (renamed EGL Genetics) is moving to a brand-new location. The Genetics clinic is also moving and both moves are upon us now!

This impacts both clinic visits and … (read more)

NEWS AND EVENTS

New Mailing Address for Blood Spots

January 18, 2017

As of February 13, 2017, the new address and contact information for Emory Genetics Lab (EGL Genetics) will be:

2460 Mountain Industrial Boulevard Tucker, Georgia 30084 470.378.2200 Fax: 470.378.2250

Please make a note of this.

 … (read more)

NEWS AND EVENTS

NPKUA Conference Coming to Atlanta!

January 6, 2017

It’s official: The National PKU Alliance has chosen the city of Atlanta for its 5th bi-annual NPKUA conference. The event, to be held July 5-8, 2018 at the beautiful downtown Hilton will draw hundreds of PKU families, medical food providers, … (read more)

Feature 2

New Emory Genetics Lab

December 16, 2016

Accurate and timely testing of blood samples to determine PHE levels is the backbone of PKU treatment. Do you know what happens to those blood samples once you drop them off or mail them in? In Georgia, we are privileged … (read more)

NEWS AND EVENTS

Life-saving Grant Funding

December 5, 2016
Georgia PKU Connect celebrates life-saving grant funding for Georgians with rare inherited metabolic disorders (IMD) diagnosed through newborn screening

Atlanta, GA – December 3, 2016.

During the 2016 legislative session, Georgia’s General Assembly voted to fund a medical foods assistance … (read more)