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2018 Camp Registration

June 4, 2018
Time to Register for Camp!

Be part of the non-stop fun at Camp Connect – August 17th-19th.

Registration open now, so don’t delay and register today!… (read more)

NEWS AND EVENTS

BioMarin’s “PegPal” Receives FDA Approval

May 26, 2018

BioMarin announced this week that the FDA has approved its Palynziq™ injection for treatment of adults with Phenylketonuria (PKU). Formerly known during the clinical trials as PegPal, this is the first enzyme therapy to treat PKU and has been demonstrated … (read more)

NEWS AND EVENTS

Medical Nutrition Therapy For Prevention Program (MNT4P)

April 3, 2017
Are you having difficulty paying for PKU medical foods (formula and low protein foods)? As we all know, without insurance coverage, the formulas and special low protein foods for PKU can become a very significant financial burden for PKU families,… (read more)
NEWS AND EVENTS

NPKUA Conference Coming to Atlanta!

January 6, 2017

It’s official: The National PKU Alliance has chosen the city of Atlanta for its 5th bi-annual NPKUA conference. The event, to be held July 5-8, 2018 at the beautiful downtown Hilton will draw hundreds of PKU families, medical food providers, … (read more)

NEWS AND EVENTS

Life-saving Grant Funding

December 5, 2016
Georgia PKU Connect celebrates life-saving grant funding for Georgians with rare inherited metabolic disorders (IMD) diagnosed through newborn screening

Atlanta, GA – December 3, 2016.

During the 2016 legislative session, Georgia’s General Assembly voted to fund a medical foods assistance … (read more)