Welcome to Georgia PKU Connect, Inc.

We are dedicated to Georgia's Phenylketonuria (PKU) community. Our mission is to connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives.

  • The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Under the leadership of the National Organization for Rare Disorders (NORD), the newly formed Patients & Providers for Medical Nutrition Equity coalition held its first meeting in November 2017. Since that time, the coalition has been busy developing info sheets for all digestive and inherited metabolic disorders covered by the bill, identifying cost documentation ... (read more)
  • In recognition of National Nutrition Month, Georgia PKU Connect is launching a new section to its website: “Diet Info”. Starting this month, in this section we will begin to post nutrition information, recipe ideas, diet tips and other information. Check it out now and be sure to check back regularly for new information.

QUICK INFO:

EVENT CALENDAR:

< 2017 >
May 14 - May 20
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    MNT4P Launch Event

    11:00 AM-2:00 PM
    05/20/2017
    1615 Clifton Rd, Atlanta, GA 30329, USA
    1615 Clifton Rd, Atlanta, GA 30329, USA

    Join us for the launch of the MNT4P Program and find out how we can serve your family.
    Where: Emory Conference Center Hotel
    Atlanta, Georgia
    When:  Saturday, May 20th, 2017
    11:00am – 2:00pm
    RSVP: Mary Lauren Salvatore, Project Manager
    (404) 778-8527 or mlsalva@emory.edu by May 10th
    Light snacks will be served.
    We will have a babysitter available on-site if you will need to bring your children. Please indicate this when you RSVP.

(Blue square indicates upcoming event. Click on day for info.)