One of the objectives of Georgia PKU Connect is to support efforts on behalf of the PKU community. Often these efforts are in conjunction with other organizations, particularly the National PKU Alliance. Please visit the National PKU Alliance Advocacy Page regularly to stay up to date on federal legislative activities and action alerts.
Helpful Documents:
U.S. Senate PKU Awareness Resolution (S. Res 627),
GMDI Position Statement on Medical Foods,
ACMG Efforts Lead to AMA’s Support of Health Coverage for Medical Food Products,
American Medical Association (AMA) Resolution 122 – Health Coverage for Nutritional Products for Inborn Errors of Metabolism,
Updates and Information about Federal Medical Foods Legislation.