ADVOCACY

It’s Time to SpeakUp4MNEA!

There’s never been a better time to advance the Medical Nutrition Equity Act. The Patients & Providers for Medical Nutrition Equity, National PKU Alliance, National PKU News and Georgia PKU Connect need YOU to commit to taking action to send … (read more)

ADVOCACY

Spring 2021 COVID-19 Impact Survey

National PKU News and other metabolic disorder organizations are interested in knowing how COVID-19 may have affected your (or your family member’s) access to medical care and treatment for PKU or another Inherited Metabolic Disorders (IMD). If you live in … (read more)

ADVOCACY

SERN Introduces Emergency Toolkit

Have you ever been traveling or faced with an emergency situation where you realized you weren’t fully prepared? We’ve all heard that we should be prepared for emergencies but for those with rare genetic disorders, there are some special considerations … (read more)