NEWS AND EVENTS

Georgia PKU Connect’s Camp Connect
September 9-11, 2022
Winder, Georgia

REGISTRATION IS OPEN!

Family Registration Counselor/Volunteer Application

Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. This year, Camp Connect will be held September 9-11, 2022 at beautiful Camp Twin Lakes Will-A-Way.

The weekend will begin Friday, September 9th at 4:00pm EST and end Sunday, September 11th at 2:00pm EST. Camp activities include boating (kayaks, paddle boards, canoes, pedal boats), swimming in the pool, miniature golf, field games, horseback riding, low protein cooking, archery, fishing, and other fun outdoor activities!

In addition to parents and siblings, caregivers like grandparents, aunts, and uncles are also welcome to attend.

We can’t wait to see old and new PKU friends! Click here for Family Registration. Financial assistance is available – email us at [email protected] for more information.

To apply to be a camp counselor, please fill out our counselor/volunteer form here.

If you have any questions about Camp Connect or being a camp counselor, please contact us at [email protected].

Check back frequently to stay informed on what’s going on in the Georgia PKU community.

News and Events Article Archive:

Emory’s Annual Metabolic Camp!
June 20-25, 2022
Emory University

For more information, please contact:
Rosalynn Borlaza Blair
404-778-8521
[email protected]
Metabolic Camp Website

Take Action to Improve Access to Medically Necessary Nutrition

January 29, 2023

Help protect the lives of PKU and other Inherited Metabolic Disorders patients by visiting nutritionequity.org today! Whether you’re a caregiver, adult living with PKU, or a friend, your advocacy efforts mean so much to our rare patient community.… (read more)

Paid Research Opportunity for Adults with PKU

January 29, 2023

A new research study of sleep behavior and emotional health in adults with phenylketonuria (PKU) is being conducted by Shawn Christ and colleagues at the University of Missouri. Adults (age 18-40 years) who have previously been diagnosed with PKU are… (read more)

Contact Congress about Formula and Medical Food Coverage for PKU

November 1, 2022

Legislation is before Congress to ensure equitable access to PKU formulas and low protein modified foods. If passed and signed in to law, the Medical Nutrition Equity Act (MNEA) would require all insurance plans in the United States to cover … (read more)

Camp Connect 2022

June 13, 2022

REGISTRATION FOR OUR 2022 CAMP IS OPEN!

Family Registration Counselor/Volunteer Application

Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. This year, Camp Connect will be held September … (read more)

Holiday Event at Berry’s Tree Farm – Thank You for Coming!

January 18, 2022

We loved seeing our PKU community friends at the Georgia PKU Connect 2021 Holiday Event! Special thanks to Berry’s Tree Farm in Covington, GA for hosting us – they were so generous and helpful. We look forward to seeing you… (read more)

Camp Connect 2021

June 20, 2021

Camp Registration is Now Closed for 2021.

Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. This year, Camp Connect will be held September 10-12, 2021 at beautiful Camp Twin … (read more)

MNT4P Special Offer

April 16, 2021

Important: Limited Time Offer for April, May, June 2021 Only!

The Medical Nutrition Therapy for Prevention Program (MNT4P) is happy to announce PKU/IMD patients living in Georgia can now order up to $300/month of Low Protein Modified Foods (LPMF) directly … (read more)

2020 Holiday Party

November 2, 2020

Join Us For Our First “Virtual” Holiday Event: – Registration is now closed –

Don’t miss this opportunity to connect with PKU families and celebrate the holidays with games and prizes!

Here are the details:

When: Saturday, December 5th, from … (read more)

COVID-19 Information

March 17, 2020

In light of the recent COVID-19 (Coronavirus) pandemic, many people naturally have questions about how this may affect them. Many of you may have recently received an email from National PKU Alliance (NPKUA) containing some very helpful information … (read more)

New PKU Gene Therapy Treatment Receives Testing Approval

January 15, 2020

As most of us are aware, there are a number of exciting new treatments for PKU that have been introduced recently or currently are in development that promise to radically change the PKU lifestyle, allowing for much more flexibility in … (read more)