Feature 1

2020 Camp – Time to Register!

July 1, 2020
Join Us On A… Safari! … It’ll Be An Adventure – Our First “Virtual Camp”! Benet Wilson is quoted as saying “extraordinary times require extraordinary measures” … and these are certainly extraordinary times. This year’s Camp Connect will be our… (read more)
Feature 2

COVID-19 Information

March 17, 2020

In light of the recent COVID-19 (Coronavirus) pandemic, many people naturally have questions about how this may affect them. Many of you may have recently received an email from National PKU Alliance (NPKUA) containing some very helpful information … (read more)

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2020 Camp – COVID-19 Update

March 11, 2020
Join Us On A… Safari! Important COVID-19 Update

Dear Georgia PKU Connect Community,

In an environment where things seem to be changing by the minute, our agenda at Georgia PKU Connect remains steadfast. This means that we continue to develop … (read more)

NEWS AND EVENTS

BioMarin’s “PegPal” Receives FDA Approval

May 26, 2018

BioMarin announced this week that the FDA has approved its Palynziq™ injection for treatment of adults with Phenylketonuria (PKU). Formerly known during the clinical trials as PegPal, this is the first enzyme therapy to treat PKU and has been demonstrated … (read more)