REGISTRATION FOR OUR 2023 CAMP IS OPEN! Family Registration Counselor/Volunteer Application Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. This year, Camp Connect will be held September 8-10, 2022 at beautiful Camp Twin Lakes Will-A-Way. The weekend will begin Friday, September 8th at 4:00pm EST and end Sunday, September 10th at 2:00pm EST. Camp activities include boating (kayaks, paddle boards, canoes, pedal boats), ... (read more)
Help protect the lives of PKU and other Inherited Metabolic Disorders patients by visiting nutritionequity.org today! Whether you’re a caregiver, adult living with PKU, or a friend, your advocacy efforts mean so much to our rare patient community.