We are dedicated to Georgia's Phenylketonuria (PKU) community.
Our mission is to connect PKU families and individuals with the support
and resources they need to manage PKU and live healthy, productive lives.
Event 1: KUVAN 9:00-12:00 designed for 4 yrs. and up Stephanie Hacker, MS, RD, LDN, CNSC Metabolic Dietitian, University of Miami Miller School of Medicine. Hear Stephanie speak about uncovering the Hidden Symptoms of PKU: Executive Functioning and its Relation to ADHD Sarah Marshall, PKU Sarah will discuss the challenges of growing up with PKU and the importance of self-awareness and ownership of her disease. She is inspirational in her perspective of ... (read more)
Coming Soon! THE BASICS: Place: Emory University Dates: June 17-22, 2019 Registration Deadline: March 1, 2019 ABOUT METABOLIC CAMP: The Annual Metabolic Camp at Emory University was developed 25 years ago by Rani H. Singh, PhD, RD to provide a supportive environment for girls and women with PKU and MSUD. The camp typically accepts 30 attendees on a first-come, first-served basis. The cost of the camp is $375.00 per person, which includes all sponsored meals, lodging, group activities, and field trips. Partial scholarships are available ... (read more)
