We are dedicated to Georgia's Phenylketonuria (PKU) community.
Our mission is to connect PKU families and individuals with the support
and resources they need to manage PKU and live healthy, productive lives.
Event 1: PKYOU AND LIVING WELL 10:00 am – 12:00 pm designed for 4 yrs. and up Stephanie Hacker, MS, RD, LDN, CNSC Metabolic Dietitian and Newborn Screen Program Manager Hear Stephanie present real-world tips, tricks, and tools to help you live well and stay active with PKU. Topics include wellness, fitness, nutrition, and finding balance between diet and fitness. (More Information and To Register Here) Event 2: PALYNZIQ 1:00 pm – ... (read more)
As most of us are aware, there are a number of exciting new treatments for PKU that have been introduced recently or currently are in development that promise to radically change the PKU lifestyle, allowing for much more flexibility in the diet, or eliminating the need for a special diet altogether. Long term, some studies being done using gene therapy techniques have the potential to at least partially “correct” the inborn error, allow the body to produce the phenylalanine hydroxylase enzyme naturally. In this vein, ... (read more)
