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REGISTRATION FOR OUR 2023 CAMP IS OPEN! Family Registration Counselor/Volunteer Application Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. This year, Camp Connect will be held September 8-10, 2022 at beautiful Camp Twin Lakes Will-A-Way. The weekend will begin Friday, September 8th at 4:00pm EST and end Sunday, September 10th at 2:00pm EST. Camp activities include boating (kayaks, paddle boards, canoes, pedal boats), ... (read more)
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Help protect the lives of PKU and other Inherited Metabolic Disorders patients by visiting nutritionequity.org today! Whether you’re a caregiver, adult living with PKU, or a friend, your advocacy efforts mean so much to our rare patient community.