There’s never been a better time to advance the Medical Nutrition Equity Act. The Patients & Providers for Medical Nutrition Equity, National PKU Alliance, National PKU News and Georgia PKU Connect need YOU to commit to taking action to send the message to Congress that it’s time to pass the Medical Nutrition Equity Act and put an end to insurance denials for medical necessary PKU treatment. What is the Medical Nutrition Equity Act? The MNEA ... (read more)
Camp Registration is Now Closed for 2021. Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. This year, Camp Connect will be held September 10-12, 2021 at beautiful Camp Twin Lakes Will-A-Way. The weekend will begin Friday, September 10th at 4:00pm EST and end Sunday, September 12th at 2:00pm EST. Camp activities include boating (kayaks, paddle boards, canoes, pedal boats), swimming in the pool, miniature golf, field games, horseback riding, low protein cooking, archery, fishing, and ... (read more)
