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2018 Spin For Kids

September 5, 2018
Do you like to ride? Or do you just like hanging out with and supporting your PKU friends? Either way, plan on participating in Spin for Kids this year!

 

Recently, from August 17th-19th, many of us had the opportunity … (read more)

NEWS AND EVENTS

BioMarin’s “PegPal” Receives FDA Approval

May 26, 2018

BioMarin announced this week that the FDA has approved its Palynziq™ injection for treatment of adults with Phenylketonuria (PKU). Formerly known during the clinical trials as PegPal, this is the first enzyme therapy to treat PKU and has been demonstrated … (read more)

NEWS AND EVENTS

Medical Nutrition Therapy For Prevention Program (MNT4P)

April 3, 2017
Are you having difficulty paying for PKU medical foods (formula and low protein foods)? As we all know, without insurance coverage, the formulas and special low protein foods for PKU can become a very significant financial burden for PKU families,… (read more)