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New Medical Nutrition Equity Act Coalition

March 6, 2018

The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Under the leadership of the National Organization for Rare Disorders (NORD), the newly formed Patients & Providers for Medical … (read more)

NEWS AND EVENTS

Medical Nutrition Therapy For Prevention Program (MNT4P)

April 3, 2017
Are you having difficulty paying for PKU medical foods (formula and low protein foods)? As we all know, without insurance coverage, the formulas and special low protein foods for PKU can become a very significant financial burden for PKU families,… (read more)
NEWS AND EVENTS

NPKUA Conference Coming to Atlanta!

January 6, 2017

It’s official: The National PKU Alliance has chosen the city of Atlanta for its 5th bi-annual NPKUA conference. The event, to be held July 5-8, 2018 at the beautiful downtown Hilton will draw hundreds of PKU families, medical food providers, … (read more)

NEWS AND EVENTS

Life-saving Grant Funding

December 5, 2016
Georgia PKU Connect celebrates life-saving grant funding for Georgians with rare inherited metabolic disorders (IMD) diagnosed through newborn screening

Atlanta, GA – December 3, 2016.

During the 2016 legislative session, Georgia’s General Assembly voted to fund a medical foods assistance … (read more)