Month: December 2016

Accurate and timely testing of blood samples to determine PHE levels is the backbone of PKU treatment. Do you know what happens to those blood samples once you drop them off or mail them in? In Georgia, we are privileged … (read more)

Georgia PKU Connect celebrates life-saving grant funding for Georgians with rare inherited metabolic disorders (IMD) diagnosed through newborn screening

Atlanta, GA – December 3, 2016.

During the 2016 legislative session, Georgia’s General Assembly voted to fund a medical foods assistance … (read more)

Congratulations to our very own Kristen Vanags for winning the Applied Nutrition Rose Award for outstanding service in the PKU Community!

Kristen has demonstrated outstanding leadership within the PKU community as President and founding member of Georgia PKU Connect and … (read more)

Georgia PKU Connect endorses the Kakkis Everylife Foundation’s Cure the Process Campaign! View endorsement letter

 

 … (read more)

Jabian Hosts Georgia PKU Connect Annual Board and Strategic Planning Meeting Read the story… (read more)

Lucas’s Lemonade Stand 2014 raises over $1500 for PKU Research – Way to go, Lucas!… (read more)

Have you registered on NBS Connect or updated your profile lately? Take me to NBS Connect… (read more)

Georgia PKU Connect donates $7,500 to National PKU Research in December 2014!… (read more)

A study is available for adults ages 18 to 70 with PKU! Learn More about Prism 301, a PEG PAL PKU Clinical Study … (read more)

Georgia PKU Connect’s Annual Fundraising Drive

January to December 2016.

If you haven’t made a donation to our 2016 campaign, we would love your help to improve lives! Donate to the Cause

 

Do you have an idea for a … (read more)