ADVOCACY

It’s Time to SpeakUp4MNEA!

There’s never been a better time to advance the Medical Nutrition Equity Act. The Patients & Providers for Medical Nutrition Equity, National PKU Alliance, National PKU News and Georgia PKU Connect need YOU to commit to taking action to send … (read more)

Feature 2

Camp Connect 2021

Camp Registration is Now Closed for 2021. 

Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. This year, Camp Connect will be held September 10-12, 2021 at beautiful Camp Twin (read more)

ADVOCACY

Spring 2021 COVID-19 Impact Survey

National PKU News and other metabolic disorder organizations are interested in knowing how COVID-19 may have affected your (or your family member’s) access to medical care and treatment for PKU or another Inherited Metabolic Disorders (IMD). If you live in … (read more)

NEWS AND EVENTS

MNT4P Special Offer

Important: Limited Time Offer for April, May, June 2021 Only!

The Medical Nutrition Therapy for Prevention Program (MNT4P) is happy to announce PKU/IMD patients living in Georgia can now order up to $300/month of Low Protein Modified Foods (LPMF) directly … (read more)