Save the Date!
Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. Our next camp will be held September 9-11, 2022 at beautiful Camp Twin Lakes Will-A-Way in Winder, Georgia.… (read more)
Legislation is before Congress to ensure equitable access to PKU formulas and low protein modified foods. If passed and signed in to law, the Medical Nutrition Equity Act (MNEA) would require all insurance plans in the United States to cover … (read more)
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Enjoy fun activities during your visit – train rides, petting zoo, photo opportunities, and more!… (read more)
The National PKU Alliance (NPKUA) is pleased to highlight their 2020 Research Awards.
The overall funding strategy of the NPKUA is to support projects that will promote advances in the treatment and management of PKU, with the long term … (read more)
Now you can send an email to your Members of Congress effortlessly in just minutes using the coalition email tool at this LINK. Please … (read more)
Camp Registration is Now Closed for 2021.
Camp Connect is for families with PKU children ages 4-18 and young adults interested in mentoring as camp counselors. This year, Camp Connect will be held September 10-12, 2021 at beautiful Camp Twin … (read more)
It’s PKU Awareness Month and what better way to celebrate than by being together. Join us Friday, May 21 from 7-8pm EDT for a virtual meet-up social event. We will feature an update from Homology Medicine, Inc. on PKU gene … (read more)
National PKU News and other metabolic disorder organizations are interested in knowing how COVID-19 may have affected your (or your family member’s) access to medical care and treatment for PKU or another Inherited Metabolic Disorders (IMD). If you live in … (read more)
The Medical Nutrition Therapy for Prevention Program (MNT4P) is happy to announce PKU/IMD patients living in Georgia can now order up to $300/month of Low Protein Modified Foods (LPMF) directly … (read more)
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