2023 - Georgia PKU Connect

Camp Connect 2023

May 23, 2023

REGISTRATION FOR OUR 2023 CAMP IS OPEN!

Family Registration Counselor/Volunteer Application

Camp Connect is for families with PKU children ages 4-17 and adults 18+ interested in volunteering as camp counselors. Join us for a life-changing weekend with PKU … (read more)

Take Action to Improve Access to Medically Necessary Nutrition

January 29, 2023

Help protect the lives of PKU and other Inherited Metabolic Disorders patients by visiting nutritionequity.org today! Whether you’re a caregiver, adult living with PKU, or a friend, your advocacy efforts mean so much to our rare patient community.… (read more)

Paid Research Opportunity for Adults with PKU

January 29, 2023

A new research study of sleep behavior and emotional health in adults with phenylketonuria (PKU) is being conducted by Shawn Christ and colleagues at the University of Missouri. Adults (age 18-40 years) who have previously been diagnosed with PKU are… (read more)