Feature 1

Two PKU Educational Events in One Day

January 12, 2019
  Event 1: KUVAN 9:00-12:00 designed for 4 yrs. and up Stephanie Hacker, MS, RD, LDN, CNSC

Metabolic Dietitian, University of Miami Miller School of Medicine.

Hear Stephanie speak about uncovering the Hidden Symptoms of PKU: Executive Functioning and its … (read more)

Feature 2

25th Annual Metabolic Camp

January 8, 2019
Coming Soon!

THE BASICS:

Place: Emory University

Dates: June 17-22, 2019

Registration Deadline: March 1, 2019

ABOUT METABOLIC CAMP:

The Annual Metabolic Camp at Emory University was developed 25 years ago by Rani H. Singh, PhD, RD to provide a … (read more)

NEWS AND EVENTS

BioMarin’s “PegPal” Receives FDA Approval

May 26, 2018

BioMarin announced this week that the FDA has approved its Palynziq™ injection for treatment of adults with Phenylketonuria (PKU). Formerly known during the clinical trials as PegPal, this is the first enzyme therapy to treat PKU and has been demonstrated … (read more)

NEWS AND EVENTS

Medical Nutrition Therapy For Prevention Program (MNT4P)

April 3, 2017
Are you having difficulty paying for PKU medical foods (formula and low protein foods)? As we all know, without insurance coverage, the formulas and special low protein foods for PKU can become a very significant financial burden for PKU families,… (read more)