SERN Introduces Emergency Toolkit

Have you ever been traveling or faced with an emergency situation where you realized you weren’t fully prepared? We’ve all heard that we should be prepared for emergencies but for those with rare genetic disorders, there are some special considerations that need to be addressed and pre-planned for. The Southeast Regional Genetics Network (SERN) Consumer Alliance is a working group of passionate parents, patients, caregivers, and advocates across the Southeast that represent an array of rare genetic disorders. SERN’s areas of focus include advocacy, caregiver support, genetic testing, newborn screening awareness, and emergency preparedness. SERN has recently prepared an “emergency toolkit” specifically for individuals with rare disorders. Follow this link for more information.