Please note: as of 12/2017, the Emory Clinic Department of Human Genetics has moved to a new location:
1365 Clifton Road, Building B, Suite 2200
Atlanta, GA 30322
Appointment Scheduling: (404) 778-8570.
Also please also note the new updated Emory … (read more)
Mark your calendar NOW for the upcoming Georgia PKU Holiday Party!
12/3/2017 1:00PM-4:00PM
Decatur Recreation Center 231 Sycamore Street Decatur, GA 30030
We will have a holiday lunch buffet for all. Please bring your favorite low protein side dish and … (read more)
Coming up next Saturday, October 21st, BioMarin is sponsoring a workshop for parents who want to learn how to better handle parenting kids with complicated diets/treatments like PKU. This event, being held at the Georgia Aquarium, includes a Low-Phe meal … (read more)
If you are riding with us in this year’s Spin For Kids fundraiser, you will want to set up a “Personal Page” to direct your friends and family to for donations. When you register to ride, you will be given … (read more)
Recently, from August 25-27th, many of us had the opportunity to participate in the 2017 Camp Connect at Camp Twin Lakes in Winder Georgia where we experienced a great weekend of fun, great food, valuable information and the opportunity to … (read more)
Do you live near Macon, GA? If so, mark your calendars for Sept 24. BioMarin is hosting a hands-on PKU cooking class featuring a professional chef, plus information about PKU, Phe levels and the brain.
Click here for more information… (read more)
If you live in Georgia, and you or someone you know has an inherited metabolic condition (e.g. PKU, VLCAD, MSUD, etc.), we need your feedback.
We mentioned recently that you would be receiving information on a survey being conducted by … (read more)
Georgia PKU Connect is excited to announce that the 6th Camp Connect for children with PKU and their families will take place on the weekend of August 25th thru August 27th in Winder, Georgia.
Thanks to our partnership with Camp … (read more)
For all of us impacted by PKU, one of the most significant issue we face is managing the cost of medical foods (formula and other special dietary products) necessary to properly maintain the diet for life.
Right now, each of … (read more)
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