PLEASE BE AWARE OF RECENT CHANGES TO THE FILTER PAPER SUBMISSION PROCESS!
The filter paper submission process prevents an interruption in metabolic medication and/or metabolic formula prescriptions for you or your child.
Filter paper results help the Clinic to provide … (read more)
Mark your calendar NOW for the upcoming Georgia PKU Holiday Party!
Decatur Recreation Center 231 Sycamore Street Decatur, GA 30030
We will have a holiday lunch buffet for all. Please bring your favorite low protein side dish and … (read more)
Coming up next Saturday, October 21st, BioMarin is sponsoring a workshop for parents who want to learn how to better handle parenting kids with complicated diets/treatments like PKU. This event, being held at the Georgia Aquarium, includes a Low-Phe meal … (read more)
If you are riding with us in this year’s Spin For Kids fundraiser, you will want to set up a “Personal Page” to direct your friends and family to for donations. When you register to ride, you will be given … (read more)
Recently, from August 25-27th, many of us had the opportunity to participate in the 2017 Camp Connect at Camp Twin Lakes in Winder Georgia where we experienced a great weekend of fun, great food, valuable information and the opportunity to … (read more)
If you live in Georgia, and you or someone you know has an inherited metabolic condition (e.g. PKU, VLCAD, MSUD, etc.), we need your feedback.
We mentioned recently that you would be receiving information on a survey being conducted by … (read more)
Did you know that PKU children are entitled to assistance under the National School Lunch program? It’s true. If your child attends a school that receives funding under the National School Lunch program, the school is required to make accommodations … (read more)