Did you know that you can receive personalized help from the MNT4P program in choosing a plan that works best for you our your child’s special medical food needs?
If you are uninsured, or exploring switching health insurance, you … (read more)
Kristen Vanags, Georgia PKU Connect Vice President and PKU Advocacy Champion, selected as finalist for the State Advocacy RareVoice Award!
RareVoice Award Patient Advocate Finalists are nominated by the rare disease community for going above and beyond to become rare disease … (read more)
If you are riding with us in this year’s Spin For Kids fundraiser, you will want to set up a “Personal Page” to direct your friends and family to for donations. When you register to ride, you will be given … (read more)
A few weeks ago, many of us had the opportunity … (read more)
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