ADVOCACY NEWS

The Medical Nutrition Equity Act needs more co-sponsors to get this bill passed this year!

Now you can send an email to your Members of Congress effortlessly in just minutes using the coalition email tool at this LINK. Please … (read more)

A little more than a year ago, the Medical Nutrition Equity Act (MNEA) was introduced in Congress…   Exactly what is MNEA? MNEA would ensure that public and private insurance covers medically necessary foods – medical formulas and low protein… (read more)

The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Under the leadership of the National Organization for Rare Disorders (NORD), the newly formed Patients & Providers for Medical … (read more)

For all of us impacted by PKU, one of the most significant issue we face is managing the cost of medical foods (formula and other special dietary products) necessary to properly maintain the diet for life.

Right now, each of … (read more)

Congratulations to our very own Kristen Vanags for winning the 2011 Applied Nutrition Rose Award for outstanding service in the PKU Community!

Kristen has demonstrated outstanding leadership within the PKU community as President and founding member of Georgia PKU Connect … (read more)

Georgia PKU Connect would like to extend a big thank you to U.S. Senator Johnny Isakson for sponsoring the 2016 National PKU Awareness Day Resolution – S. Res 627! Senator Isakson also passed the inaugural PKU Awareness Resolution in 2012. … (read more)

We are thrilled to share some wonderful news. During the 2015 Georgia Legislative Session a state budget line item passed to setup a medical foods assistance program! This means Georgia patients with PKU or other Inherited Metabolic Disorder (IMD) who … (read more)