NEWS ARCHIVE

Georgia Advocates Hold Important Advocacy Event for Rare Disease Day®

Atlanta, GA February 17,  2017—Join rare disease patients, caregivers and other health care advocates looking to make a difference in Georgia on February 17th as part of Rare Disease Day® … (read more)

For several months, we have been reporting that the Emory Genetics Lab (renamed EGL Genetics) is moving to a brand-new location. The Genetics clinic is also moving and both moves are upon us now!

This impacts both clinic visits and … (read more)

As of February 13, 2017, the new address and contact information for Emory Genetics Lab (EGL Genetics) will be:

2460 Mountain Industrial Boulevard Tucker, Georgia 30084 470.378.2200 Fax: 470.378.2250

Please make a note of this.

 … (read more)

Accurate and timely testing of blood samples to determine PHE levels is the backbone of PKU treatment. Do you know what happens to those blood samples once you drop them off or mail them in? In Georgia, we are privileged … (read more)

Georgia PKU Connect celebrates life-saving grant funding for Georgians with rare inherited metabolic disorders (IMD) diagnosed through newborn screening

Atlanta, GA – December 3, 2016.

During the 2016 legislative session, Georgia’s General Assembly voted to fund a medical foods assistance … (read more)

Congratulations to our very own Kristen Vanags for winning the Applied Nutrition Rose Award for outstanding service in the PKU Community!

Kristen has demonstrated outstanding leadership within the PKU community as President and founding member of Georgia PKU Connect and … (read more)

Georgia PKU Connect endorses the Kakkis Everylife Foundation’s Cure the Process Campaign! View endorsement letter

 

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Jabian Hosts Georgia PKU Connect Annual Board and Strategic Planning Meeting Read the story… (read more)

Lucas’s Lemonade Stand 2014 raises over $1500 for PKU Research – Way to go, Lucas!… (read more)