Legislation is before Congress to ensure equitable access to PKU formulas and low protein modified foods. If passed and signed in to law, the Medical Nutrition Equity Act (MNEA) would require all insurance plans in the United States to cover … (read more)
As you may have heard, EGL Eurofins lab no longer processes PKU filter papers. ARUP Lab in Salt Lake City, Utah will process filter papers starting December 1, … (read more)
The Emory Genetics Clinic is currently transitioning from Emory Genetics Laboratory to a new provider. To prevent an interruption in filter paper service, please contact the MNT4P program immediately by following this link: … (read more)
BioMarin announced this week that the FDA has approved its Palynziq™ injection for treatment of adults with Phenylketonuria (PKU). Formerly known during the clinical trials as PegPal, this is the first enzyme therapy to treat PKU and has been demonstrated … (read more)
Atlanta, GA February 17, 2017—Join rare disease patients, caregivers and other health care advocates looking to make a difference in Georgia on February 17th as part of Rare Disease Day® … (read more)
For several months, we have been reporting that the Emory Genetics Lab (renamed EGL Genetics) is moving to a brand-new location. The Genetics clinic is also moving and both moves are upon us now!
This impacts both clinic visits and … (read more)
As of February 13, 2017, the new address and contact information for Emory Genetics Lab (EGL Genetics) will be:
2460 Mountain Industrial Boulevard Tucker, Georgia 30084 470.378.2200 Fax: 470.378.2250
Please make a note of this.
Accurate and timely testing of blood samples to determine PHE levels is the backbone of PKU treatment. Do you know what happens to those blood samples once you drop them off or mail them in? In Georgia, we are privileged … (read more)
Atlanta, GA – December 3, 2016.
During the 2016 legislative session, Georgia’s General Assembly voted to fund a medical foods assistance … (read more)