NEWS AND EVENTS

Join us for Camp Connect 2024!

Georgia PKU Connect will host its 13th Annual PKU Family Camp September 6-8 at the amazing Camp Twin Lakes Will-A-Way in Winder, Georgia, USA. Last year, we were thrilled to host 140 campers from 7 states! Community members outside of Georgia are always welcome.

Camp activities include boating (kayaks, paddle boards, canoes, pedal boats), swimming in the pool, dodgeball, horseback riding, low protein cooking, archery, fishing, field games, and other fun outdoor activities!

In addition to parents and siblings, relatives like grandparents, aunts, and uncles are also invited to attend, and we love having adults with PKU join us as volunteer camp counselors.

Registration will open in mid-April.

If you have any questions about Camp Connect, contact us at [email protected].

Check back frequently to stay informed on what’s going on in the Georgia PKU community.

News & Events Archive:

COVID-19 Information

March 17, 2020

In light of the recent COVID-19 (Coronavirus) pandemic, many people naturally have questions about how this may affect them. Many of you may have recently received an email from National PKU Alliance (NPKUA) containing some very helpful information … (read more)

New PKU Gene Therapy Treatment Receives Testing Approval

January 15, 2020

As most of us are aware, there are a number of exciting new treatments for PKU that have been introduced recently or currently are in development that promise to radically change the PKU lifestyle, allowing for much more flexibility in … (read more)

NEWS AND EVENTS

Help With Medical Insurance for Medical Food Coverage

October 21, 2019

Did you know that you can receive personalized help from the MNT4P program in choosing a plan that works best for you our your child’s special medical food needs?

If you are uninsured, or exploring switching health insurance, you … (read more)

RareVoice Awards Finalist – State Advocacy

October 18, 2019

Kristen Vanags, Georgia PKU Connect Vice President and PKU Advocacy Champion, selected as finalist for the State Advocacy RareVoice Award!

RareVoice Award Patient Advocate Finalists are nominated by the rare disease community for going above and beyond to become rare disease … (read more)

2019 Spin for Kids

October 3, 2019

Do you like to ride? Or do you just like hanging out with and supporting your PKU friends? Either way, plan on participating in Spin for Kids this year!

A few weeks ago, many of us had the opportunity … (read more)

25th Annual Metabolic Camp

January 8, 2019

Coming Soon!

THE BASICS:

Place: Emory University

Dates: June 17-22, 2019

Registration Deadline: March 1, 2019

ABOUT METABOLIC CAMP:

The Annual Metabolic Camp at Emory University was developed 25 years ago by Rani H. Singh, PhD, RD to provide a … (read more)

Medical Nutrition Therapy For Prevention Program (MNT4P)

April 3, 2017

Are you having difficulty paying for PKU medical foods (formula and low protein foods)? As we all know, without insurance coverage, the formulas and special low protein foods for PKU can become a very significant financial burden for PKU families,… (read more)