RECIPES

Cinnamon Buns

CINNAMON BUNS OR CINNAMON SWIRL BREAD   Ingredients: Water, warm 1 cup (225 ml) + ¼ cup Brown sugar +honey 1 Tbsp +1 Tbsp Molasses (optional, improves color) ¼ tsp Active dry yeast 1 package (1 ½ tsp or 7… (read more)
RECIPES

Cornbread

VERSA MIX CORN MUFFINS/BREAD TC- Versa Mix 1 ¼ cup (140 gm) sifted Corn meal 1 Tbs (8 g) Brown Sugar 2 Tbs (30 g) Butter (melted) 2 Tbs Vegetable oil 1 Tbs Cream-Style Corn ¼ Cup (40 gm) Water… (read more)
EVENTS ARCHIVE

2018 Spin For Kids

Do you like to ride? Or do you just like hanging out with and supporting your PKU friends? Either way, plan on participating in Spin for Kids this year!

 

Recently, from August 17th-19th, many of us had the opportunity … (read more)

ADVOCACY

SERN Introduces Emergency Toolkit

Have you ever been traveling or faced with an emergency situation where you realized you weren’t fully prepared? We’ve all heard that we should be prepared for emergencies but for those with rare genetic disorders, there are some special considerations … (read more)

ADVOCACY ARCHIVE

Medical Foods Coverage Update

A little more than a year ago, the Medical Nutrition Equity Act (MNEA) was introduced in Congress…   Exactly what is MNEA? MNEA would ensure that public and private insurance covers medically necessary foods – medical formulas and low protein… (read more)