BioMarin announced this week that the FDA has approved its Palynziq™ injection for treatment of adults with Phenylketonuria (PKU). Formerly known during the clinical trials as PegPal, this is the first enzyme therapy to treat PKU and has been demonstrated … (read more)
In recognition of National Nutrition Month, Georgia PKU Connect is launching a new section to its website: “Diet Info”. Starting this month, in this section we will begin to post nutrition information, recipe ideas, diet tips and other information. Check … (read more)
Color Your Plate and add a new FRESH fruit or vegetable to your favorite meal!… (read more)
The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Under the leadership of the National Organization for Rare Disorders (NORD), the newly formed Patients & Providers for Medical … (read more)
For the past year and a half, residents of Georgia have been very fortunate to have access to a unique assistance program – Medical Therapy for Prevention Program (MNT4P) – which bridges the nutritional products coverage gap for patients with … (read more)
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