2019 - Georgia PKU Connect

Emory Filter Paper Submission Policy

December 15, 2019

The filter paper submission process prevents an interruption in metabolic medication and/or metabolic formula prescriptions for you or your child.

Filter paper results help the Clinic to provide you with good clinical care. Please contact the Department of Human Genetics … (read more)

PKU Educational Event

November 6, 2019

Please joins us for a PKU Event, sponsored by BioMarin, at Yes, Chef! in Roswell GA on Saturday, December 7th. Stephanie Hacker, Metabolic Dietitian will be speaking on PKU and sports, physical activity, and wellness. Chef Andy will also be … (read more)

2019 Holiday Party

November 1, 2019

Registration is now Closed.

For more information, please contact us at [email protected]

Join Us for Some Holiday Fun: Enjoy Park Amenities! Low Protein Lunch Provided! Fabulous Door Prizes! Here are the details:

When: Sunday, December 1, 2019; … (read more)

NEWS AND EVENTS

Help With Medical Insurance for Medical Food Coverage

October 21, 2019

Did you know that you can receive personalized help from the MNT4P program in choosing a plan that works best for you our your child’s special medical food needs?

If you are uninsured, or exploring switching health insurance, you … (read more)

RareVoice Awards Finalist – State Advocacy

October 18, 2019

Kristen Vanags, Georgia PKU Connect Vice President and PKU Advocacy Champion, selected as finalist for the State Advocacy RareVoice Award!

RareVoice Award Patient Advocate Finalists are nominated by the rare disease community for going above and beyond to become rare disease … (read more)

SFK Personal Page Suggestions

October 3, 2019

If you are riding with us in this year’s Spin For Kids fundraiser, you will want to set up a “Personal Page” to direct your friends and family to for donations. When you register to ride, you will be given … (read more)

2019 Spin for Kids

October 3, 2019

Do you like to ride? Or do you just like hanging out with and supporting your PKU friends? Either way, plan on participating in Spin for Kids this year!

A few weeks ago, many of us had the opportunity … (read more)

Tortillas

September 3, 2019

TORTILLAS Ingredients: TC- Multi-baking Mix 1 cup (110 gm) Taco seasoning (optional) 1/3 cup (100 gm) Water ½ tsp

Directions

1. Combine the baking mix and the seasoning in a bowl; add enough water to make a … (read more)

Back to School PKU Pantry Table

July 31, 2019

On Thursday, August 8th from 1:00 – 7:00 pm, BioMarin is sponsoring a “PKU Pantry Table” event in Kennesaw. This event is open house style, so families are welcome to stop by any time during those hours. They will have … (read more)

2019 Camp Registration

May 29, 2019

The Magic of Camp Registration for Camp is now Closed.

For more information, please contact us at [email protected]… (read more)