EVENTS ARCHIVE

  Event 1: KUVAN 9:00-12:00 designed for 4 yrs. and up Stephanie Hacker, MS, RD, LDN, CNSC

Metabolic Dietitian, University of Miami Miller School of Medicine.

Hear Stephanie speak about uncovering the Hidden Symptoms of PKU: Executive Functioning and its … (read more)

Coming Soon!

THE BASICS:

Place: Emory University

Dates: June 17-22, 2019

Registration Deadline: March 1, 2019

ABOUT METABOLIC CAMP:

The Annual Metabolic Camp at Emory University was developed 25 years ago by Rani H. Singh, PhD, RD to provide a … (read more)

When: Thursday, November 15th Time: 7:30PM-8:30PM EST Where: Online – Webinar

You Must RSVP to Participate

Details are Here

 

… (read more)

Join Us for Some Holiday Fun: Enjoy Park Amenities! Low Protein Lunch Provided! Fabulous Door Prizes! Here are the details:

When: Sunday, December 2, 2018 Where: Sweetwater Park: https://gastateparks.org/sweetwatercreek What: Lunch Served in the Event Room from 12:00-2:00 pm EST, … (read more)

Do you like to ride? Or do you just like hanging out with and supporting your PKU friends? Either way, plan on participating in Spin for Kids this year!

 

Recently, from August 17th-19th, many of us had the opportunity … (read more)

Time to Register for Camp!

Be part of the non-stop fun at Camp Connect – August 17th-19th.

Registration open now, so don’t delay and register today!… (read more)

Mark your calendar NOW for the upcoming Georgia PKU Holiday Party!

12/3/2017 1:00PM-4:00PM

Decatur Recreation Center 231 Sycamore Street Decatur, GA 30030

We will have a holiday lunch buffet for all. Please bring your favorite low protein side dish and … (read more)

Coming up next Saturday, October 21st, BioMarin is sponsoring a workshop for parents who want to learn how to better handle parenting kids with complicated diets/treatments like PKU. This event, being held at the Georgia Aquarium, includes a Low-Phe meal … (read more)

Recently, from August 25-27th, many of us had the opportunity to participate in the 2017 Camp Connect at Camp Twin Lakes in Winder Georgia where we experienced a great weekend of fun, great food, valuable information and the opportunity to … (read more)

Do you live near Macon, GA? If so, mark your calendars for Sept 24. BioMarin is hosting a hands-on PKU cooking class featuring a professional chef, plus information about PKU, Phe levels and the brain.

Click here for more information… (read more)